Official website of the SSA numerous pages for families and survivors.
Website: http://www.ssa.gov
National Cemetery Administration
This is a website for veterans that contains cemetery and burial information.
Website: http://www.cem.va.gov
Tragedy Assistance Program for Survivors
Provides services who have lost a loved one in the line of military duty on-call 24hrs 800-959-TAPS. TAPSHQ@aol.com
Veteran’s Affairs
Department of Veterans Affairs relevant links for those who have served our country.
Website: http://www.va.gov
Alphabetical List of Resources
Administration on Aging
The Administration on Aging (AoA) web site includes information designed for Older Americans and their families as well as those concerned about providing the opportunities and services to enrich the lives of older persons and support their independence.
Website: http://www.aoa.gov
Aids Information Network
1211 Chestnut Street, 7th Floor, Philadelphia, PA 19107.
Runs projects related to education and prevention of HIV/AIDS. Library answers questions by phone, fax or e-mail.
Phone: 215-575-1110 x131
Fax: 215-575-1123
E-mail: aidsinfo@critpath.org
ALS Association
21021 Ventura Blvd., Suite 321, Woodland Hills, CA 91364.
National information resource for Amyotrophic Lateral Sclerosis (ALS), commonly referred to as Lou Gehrig’s disease.
Phone: 818-340-7500
Web site: http://www.alsa.org.
American Academy of Hospice and Palliative Medicine
AAHPM is an organization for physicians who are committed to furthering and fostering the practice of hospice/palliative care for the terminally ill and their families.
Website: http://www.aahpm.org
Cancer Net
This site offers a wide range of accurate and credible information from the National Cancer Institut.
Website: http://www.cancer.gov/
Candlelighters Childhood Cancer Foundation
7910 Woodmont Ave., Suite 460, Bethesda, MD 20814. Provides support and information to families with children who have cancer, to professionals, and to adult survivors.
Phone: 301-657-8401 or 800-366-2223
Web site: http://www.candlelighters.org
Caregiver Survival Resources
Care giving is becoming a significant issue for many people. This resource provides help to others to cope with the demands of care giving.
Website: http://www.caregiver911.com/
Catholic Health Association of the United States
Catholic-sponsored health organizations provide the aged and chronically ill population with a broad spectrum of high-quality professional services.
Website: http://www.chausa.org
Children of Aging Parents (CAPs)
Children of Aging Parents (CAPS) is a nonprofit organization that provides information and emotional support to caregivers of older people. CAPS serves as a national clearinghouse for information on resources and issues dealing with older people.
Website: http://www.careguide.com
Healthfinder
Consumer healthcare information from the U.S. Government, with selected online publications, databases, web sites and support groups.
Web site: http://www.healthfinder.gov.
Hemlock Society USA and PRO-USA
For those who support the rights of the terminally ill to choose death with dignity, who support personal control and autonomy in end-of-life decisions, and who believe that laws should allow a terminally ill person the choice of medical assistance in hastening their death.
Web site: http://www.hemlock.org/hemlock/index.html
Hospice Foundation of America
2001 S Street NW, Suite 300, Washington, DC 20009. Sponsors an annual Living with Grief teleconference series, a monthly bereavement newsletter and other publications.
Phone: 202-638-5419
Web site: http://www.hospicefoundation.org
INTERNAL REVENUE SERVICE
This is the official website for the IRS. It contains up to date information as well as downloadable forms that can be completed and filed.
Website: http://www.irs.gov/
International Hospice Institute & College
A non-profit organization dedicated to sharing hospice and palliative care information world-wide.
Web site: http://www.hospicecare.com
International THEOS Foundation
322 Blvd. of the Allies, Suite 105, Pittsburgh, PA 15222 THEOS (They Help Each Other Spiritually) helps people whose spouses have died, providing educational materials and emotional support for the newly widowed.
Phone: 412-471-7779.
Last Acts
Last Acts is a call-to-action campaign designed to improve care at the end of life. Its goals are to bring end-of-life issues out into the open and to help individuals and organizations pursue the search for better ways to care for the dying.
Phone: 609-452-8701
Web site: http://www.lastacts.org
Leukemia Society of America
600 Third Ave., New York, NY 10016. Dedicated to the cure of leukemia and its related cancers – lymphoma, multiple myeloma and Hodgkin’s disease – and to improve the quality of life of patients and their families.
Phone: 212-573-8484
Website: http://www.leukemia.org
Med Help
A non-profit organization founded to assist those in need of medical information written in non-technical terminology.
Web site: http://www.medhelp.org
Medic Alert Foundation
The Medic Alert Foundation is a worldwide nonprofit organization dedicated to providing personal medical information to protect and save lives.
Website: http://www.medicalert.org/
Medical College of Wisconsin Palliative Care Program
This program is committed to improving care for the dying in America through the development, implementation and dissemination of innovative education and clinical care programs.
Website: http://www.mcw.edu/pallmed/
Medicare Rights Center
The Medicare Rights Center (MRC) provides free counseling services to Medicare beneficiaries who cannot afford private assistance for Medicare-related issues.
Web site: http://www.medicarerights.org
Medicare Consumer Information
The Health Care Financing Administration (HCFA) administers Medicare, the nation’s largest health insurance program, which covers 39 million Americans. Medicare provides health insurance to people age 65 and over and those who have permanent disabilities.
Websites: http://www.medicare.gov
http://www.hcfa.gov/medicare/mcarcnsm.htm
Multiple Sclerosis Association
706 Haddonfield Rd. Cherry Hill, NJ 08002. Provides direct care services to those with MS, including a national toll-free hotline, peer counseling, support groups, therapeutic equipment loan program, educational literature, and symptom management therapies.
Phone: 800-833-4672.
MySeniorCare
32605 W 12 Mile Road,Suite 275, Farmington Hills, MI 48334
MySeniorCare is a free, online community dedicated to supporting families as they try and find reliable information and resources regarding their choices and options. We have been reviewed and approved by the National Institute of Health and we are currently working with the National Institute on Aging, as well as with a number of local governments to help families find reliable senior care options.
(ph) 248-792-1762-(f) (949)608-1578
http://www.MySeniorCare.com/
The National Aging Information Center (NAIC), established in 1995 by the Administration on Aging, serves as a central source of aging information for a broad national audience.
Web site: http://www.aoa.dhhs.gov/naic/default.htm
National Association of Area Agencies on Aging (NAAAA)
The National Association of Area Agencies on Aging (NAAAA) represents the interests of Area Agencies on Aging across the country.
Web site: http://www.n4a.org/
National Coalition for Cancer Survivorship
1010 Wayne Avenue, Suite 505, Silver Spring, MD 20910. NCCS offers information on employment and insurance issues and provides referrals to sources of support and information.
Phone: 301-650-8868.
Web site: http://www.access.digex.net/mkragen/canserach.html
National Consumer Law Center
The National Consumer Law Center is a private, nonprofit legal resource organization that is committed to making consumer law work for the interests of low income people.
Web site: http://www.consumerlaw.org/
National Counsel on Aging
NCOA is an organization representing agencies and individuals committed to the well-being of the increasing older population.
Web site: http://www.shs.net/
National Hospice Organization
1901 N. Moore St., Suite 901, Arlington, VA 22209. NHO provides referral services to link individuals with hospices in their local communities, and various educational programs.
Phone: 703-243-5900
Web site: http://www.nho.org
National Health Information Center
The National Health Information Center (NHIC) is a health information referral service. NHIC puts health professionals and consumers who have health questions in touch with those organizations that are best able to provide answers.
Web site: http://nhic-nt.health.org/
The National Institute on Aging
NIA promotes healthy aging by conducting and supporting biomedical, social, and behavioral research and public education.
Web site: http://www.nih.gov/nia/
National Kidney Foundation
30 East 33rd Street, New York, NY 10016.
Supports research projects and sponsors community programs in treatment, service, education and prevention of diseases of the kidney and urinary tract.
Phone: 800-622-9010
Web site: http://www.kidney.org.
National Long-Term Care Ombudsman Resource Center
The National Long-Term Care Ombudsman Resource Center supports the ongoing development and operation of the 52 stateside long-term-care ombudsman programs.
National Parkinson Foundation
1501 NW 9th Ave., Miami, FL 33136.
Committed to finding the cause and cure for Parkinson’s disease and other allied neurological disorders through research, to provide diagnostic and therapeutic services, to improve the quality of life for patients and caregivers, and to educate people about Parkinson’s disease.
Phone: 800-327-4545
Web site: http://www.parkinson.org.
National Resource and Policy Center on Housing and Long-Term Care, in partnership with the National Association of Area Agencies on Aging, Brandeis University, and the National Association of Housing and Redevelopment Officials–works to make housing an integral part of long-term care.
Web site: http://www.homemods.org/
National Senior Citizens Law Center
The National Senior Citizens Law Center (NSCLC) is a public- interest law firm that specializes in the legal problems of older people.
Web site: http://www.nsclc.org/
National Stroke Association
96 Inverness Drive East, Suite 1, Englewood, CO 80112-5112.
Dedicated entirely to the prevention, treatment and research of stroke, and support for stroke victims and their caregivers.
Phone: 303-649-9299
Web site: http://www.stroke.org.
The Never-Ending Squirrel Tale
PO Box 1562, Columbia, MD 21044-0562.
Practical tips and encouragement for the parents of kids with cancer.
Web site: http://www.squirreltales.com
Pediatrics Home Care
Guide Hosted by the Pediatric Oncology Group, this site is dedicated to providing information useful to those caring for children with cancer at home.
Web site:http://www.hmc.psu.edu/depts/pedsonco/Homeguide.html
The Retired Officers Association
TROA is an independent nonprofit organization exclusively operated to benefit uniformed services personnel and their families and survivors.
Web site: http://www.troa.org/
Senior Housing Net
Search Senior Housing Net’s directory of retirement communities, assisted living facilities and nursing homes for you or your loved ones.
Web site: http://www.rent.net/ctg/cgi-bin/RentNet/SeniorHousingHome
Social Security Administration
This is the official website of the SSA. There are numerous pages of information and links for families and survivors benefits.
Web site: http://www.ssa.gov/
Tragedy Assistance Program for Survivors
2001 S Street, NW, Suite 300, Washington, DC 20009.
TAPS provides services to those who have lost a loved one in the line of military duty. Through peer support, crisis intervention (on-call 24 hours per day), case workers and grief counseling referrals to help families and military personnel cope.
Phone: 800-959-TAPS (8277).
Web site: http://www.taps.org/
Veteran’s Affairs
This web site links to the Department of Veterans Affairs website which has a collection of relevent links for those who have served our country.
Website: http://www.va.gov/default.htm
National Cemetery Administration
This is a website for veterans that contains cemetery and burial information.
Website: http://www.cem.va.gov
Widowed Persons Service
4270 Chicago Drive SW, Grandville, MI 49418.
A self-help support group for men and women who have experienced the death of a spouse, offering day and evening meetings, seminars, social activities and public education of the experience of being widowed.
Phone: 616-538-0101
Website: http://www.wpstc.org/